Tim Scott (R-SC)
Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2025
A Republican bill with 3 Democratic cosponsors · See all 3 cosponsors
Last activity — Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
In committee
Introduced and handed to a committee in the chamber it started in.
The committee holds it, and most bills are never heard from again. A hearing or a committee vote would be news; silence is the usual outcome, and it kills the bill without anyone voting against it.
Its path through Congress
- Introduced
- In Committee
What this bill would do
This bill, titled the "Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2025," seeks to amend the Public Health Service Act. It focuses on reauthorizing a demonstration program regarding sickle cell disease. The legislation expands the scope of the program to include the prevention and treatment of complications associated with the disease. Additionally, it modifies how entities can receive support through grants, contracts, or cooperative agreements. Finally, it increases the funding allocated for the program for specific fiscal years.
Yes· 3 of 6
- Scored +5
Would Black Americans be better off under this?
The bill increases funding and expands the scope of care for sickle cell disease, which disproportionately affects the Black community.
- Scored +5
Does this make health care easier to get in general?
The bill expands the scope of the demonstration program to include the prevention and treatment of complications of sickle cell disease.
- Scored +5
Does this put more money into medical research?
The bill increases the annual allocation for the sickle cell demonstration program to $8,205,000 for fiscal years 2025 through 2029.
The opposite
No question was scored the opposite.
Who it would affect, and how
Potential Positive Impacts for People
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Expanded Medical Scope: The bill changes the focus from just the "prevention and treatment of sickle cell disease" to include the "treatment of sickle cell disease and the prevention and treatment of complications of sickle cell disease" (Section 2(a)(1), Section 2(a)(2), and Section 2(a)(3)(B)). This could help patients manage the various health issues that arise from the disease rather than just the disease itself.
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Increased Funding: The bill increases the allocated amount to "$8,205,000 for each of fiscal years 2025 through 2029" (Section 2(a)(4)). This provides more financial resources to support the program compared to the previous funding levels.
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Flexible Support Methods: The bill allows for making a grant to, or entering into a contract or cooperative agreement with, entities (Section 2(a)(3)(A)). This provides more ways for the program to distribute resources to those doing the work.
Potential Negative Impacts for People
- No negative impacts or burdens are explicitly stated in the provided text.
Groups and Interests Ranking
Every group the model scored this bill for, from -10 to +10. Tap or hover a score for the reason it gave.
- Demographic And Interest Groups
- Would Black Americans be better off under this? — The bill increases funding and expands the scope of care for sickle cell disease, which disproportionately affects the Black community. Would households on low incomes be better off under this? — The expanded medical scope for managing sickle cell complications provides increased support for those managing chronic conditions. Would people with disabilities be better off under this? — The expansion to include prevention and treatment of complications provides better support for those living with chronic blood disorders.
- Healthcare
- Does this make health care easier to get in general? — The bill expands the scope of the demonstration program to include the prevention and treatment of complications of sickle cell disease. Does this put more money into medical research? — The bill increases the annual allocation for the sickle cell demonstration program to $8,205,000 for fiscal years 2025 through 2029.
- Social Issues And Justice
- Does this narrow racial gaps in how people are treated? — The bill targets funding for sickle cell disease, a condition that disproportionately affects certain racial groups.
- 12/18/2025
- 1 Cosponsor added.
- 12/8/2025
- 1 Cosponsor added.
- 2/26/2025
- Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
- 1 Cosponsor added.
- Introduced in Senate
4 bills Congress.gov lists as related to this one — companions in the other chamber, earlier versions, and bills this one absorbed or was folded into.
Cory BookerDemocrat · New Jersey
Jon OssoffDemocrat · Georgia
Raphael WarnockDemocrat · Georgia