A Democratic bill with 2 Democratic cosponsors · See all 2 cosponsors
Last activity — Referred to the House Committee on Energy and Commerce.
In committee
Introduced and handed to a committee in the chamber it started in.
The committee holds it, and most bills are never heard from again. A hearing or a committee vote would be news; silence is the usual outcome, and it kills the bill without anyone voting against it.
Its path through Congress
- Introduced
- In Committee
What this bill would do
This bill establishes a program to award grants for creating Sickle Cell Disease Treatment Centers using a hub-and-spoke framework. It sets up a National Sickle Cell Disease Coordinating Center to coordinate grantee activities and develop national strategies for equitable care. The legislation requires the Centers for Disease Control and Prevention to conduct data collection and public awareness programs regarding sickle cell disease. Eligible entities must include a medical hub, at least one spoke, and a community-based nonprofit organization partnering together. The bill also mandates regular reports to Congress on the impact of these treatment centers on patient health outcomes. Finally, it authorizes the appropriation of funds to support these treatment programs and related activities starting in fiscal year 2027.
Yes· 3 of 21
- Scored +8
Would Black Americans be better off under this?
Because sickle cell disease disproportionately impacts Black Americans, this comprehensive funding and care initiative directly targets and improves health outcomes within the African American community.
- Scored +8
Does this make health care easier to get in general?
The legislation establishes a hub-and-spoke framework and grants to significantly improve lifelong health care access, care coordination, and support services for sickle cell disease patients.
- Scored +7
Would children be better off under this?
The legislation specifically emphasizes improving health outcomes for children and youth, alongside structured pediatric-to-adult health care transition programs.
The opposite
No question was scored the opposite.
Who it would affect, and how
Potential Positive Impacts for People
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Improved Health Care Access and Coordination: Section 2, amending the Public Health Service Act as proposed section 330Q(b), establishes treatment centers using a hub-and-spoke framework to promote access to coordinated, lifelong health care and integrated health care teams for patients with sickle cell disease. This is positive because it helps patients receive comprehensive, organized medical care throughout their lives.
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Support for Social and Community Needs: Section 2, proposed section 330D(d)(2)(B), allows community-based organizations to provide support in addressing social determinants of health, such as food insecurity, housing insecurity, and access to education and transportation. This is considered beneficial because it addresses everyday living challenges that affect the well-being of patients and their families.
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Education on Implicit Bias and Treatment Standards: Section 2, proposed section 330Q(d)(1)(H), requires medical hubs to educate health care providers on social determinants of health and implicit bias that may affect the quality of care and life for patients. This is a positive step toward ensuring fair and equitable treatment for individuals living with sickle cell disease or related conditions.
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Assistance with Health Insurance and Financial Burdens: Section 2, proposed section 330Q(d)(4)(B), permits grant funds to be used to assist sickle cell disease patients with accessing appropriate health insurance, including through the payment of insurance premiums and cost-sharing amounts where permitted by law. This helps relieve the financial burdens associated with obtaining necessary medical coverage.
Potential Negative Impacts for People
- The provided text does not contain any explicit sections or provisions outlining potential negative consequences or burdens for individuals or groups of people in the United States.
Groups and Interests Ranking
Every group the model scored this bill for, from -10 to +10. Tap or hover a score for the reason it gave.
- Demographic And Interest Groups
- Would Black Americans be better off under this? — Because sickle cell disease disproportionately impacts Black Americans, this comprehensive funding and care initiative directly targets and improves health outcomes within the African American community. Would children be better off under this? — The legislation specifically emphasizes improving health outcomes for children and youth, alongside structured pediatric-to-adult health care transition programs. Would households on low incomes be better off under this? — Grants assist patients with insurance premiums, cost-sharing, and addressing basic social determinants of health such as food and housing insecurity, greatly benefiting low-income individuals. Would people in middle age be better off under this? — Adults with sickle cell disease benefit from lifelong coordinated care, comprehensive specialty treatment, and pain management provided through the hubs and spokes. Would people with disabilities be better off under this? — The bill provides comprehensive clinical care, social work, and support services that assist individuals managing severe chronic health complications and functional limitations. Would people in their twenties and thirties be better off under this? — The bill improves the pediatric-to-adult health care transition, directly benefiting young adults managing sickle cell disease. Would people over 65 be better off under this? — Older adults living with heritable hemoglobinopathies benefit from continued access to coordinated comprehensive care and chronic disease management. Would veterans be better off under this, taking everything together? — Veterans living with sickle cell disease or trait will have improved access to specialized care networks, telehealth, and comprehensive health management. Would students be better off under this? — The legislation supports educational programs for school personnel regarding sickle cell care, improving the school environment for affected students.
- Healthcare
- Does this make health care easier to get in general? — The legislation establishes a hub-and-spoke framework and grants to significantly improve lifelong health care access, care coordination, and support services for sickle cell disease patients. Does this put more money into medical research? — The legislation coordinates comprehensive sickle cell research and data collection strategies through the CDC and a National Coordinating Center. Does this do more about addiction and overdose deaths? — The hub-and-spoke treatment model explicitly provides for integrated pain management services for sickle cell disease patients. Does this put more money into Medicaid, the health coverage for people on low incomes? — The bill provides grant funding that can be used to help patients secure health insurance coverage and reimbursement under Medicaid and other programs. Does this help veterans get medical care? — The establishment of comprehensive sickle cell treatment centers and expanded care networks benefits all individuals suffering from the condition, including veterans.
- Social Issues And Justice
- Does this narrow racial gaps in how people are treated? — Sickle cell disease predominantly affects Black Americans, and the bill mandates training on implicit bias and social determinants of health to reduce care disparities. Is this likely to lift people out of poverty? — Grant funds support addressing critical social determinants of health such as housing, food insecurity, and transportation, helping alleviate financial and socioeconomic burdens. Is this likely to reduce homelessness? — Community-based organizations within the grant framework are permitted to provide support for housing insecurity.
- Education And Technology
- Does this put more money into scientific research? — The bill enhances data collection through the CDC and establishes a National Sickle Cell Disease Coordinating Center to maintain comprehensive research and treatment strategies. Does this put more money into public schools? — Grant funding may support educational programs for teachers and school personnel on caring for students with sickle cell disease or trait.
- Governance And Ideology
- Does this make what the government does easier for the public to see? — The bill mandates regular reports to Congress detailing grant activities, patient demographics, and the impact of the treatment centers on health outcomes. Does this give the federal government more power? — The bill expands federal involvement by establishing a new national grant program, a coordinating center, and CDC data collection requirements.
- 9/24/2026
- Referred to the House Committee on Energy and Commerce.
- 2 Cosponsors added.
- Introduced in House
One bill Congress.gov lists as related to this one — companions in the other chamber, earlier versions, and bills this one absorbed or was folded into.
Danny DavisDemocrat · Illinois
Glenn IveyDemocrat · Maryland